Feeling punky

So, Mathias made it through a rough week of chemo. He has amazing energy and spirit considering what he's been going through. Mathias receives an oral chemo every night now and it's one that is hard on his liver and also one that his body may have problems processing due to his issue with the enzyme that processes that drug. Mathias also received intrathecal chemo and several different chemos in his port on Wednesday.

They sent him 'home' with me with his port still accessed and I administered his chemo this past Thursday, Friday, and Saturday. That went well, but I was paranoid about him being so active with a needle stuck in his chest for those days. He would run and play and sometimes accidently bump it and then it would be sore.

Saturday I removed the needle from his port and he will be needle free until Wednesday when we go in again to start the four day course of ARA-C again. Then, next Monday we go in to check and see where his counts are. As soon as his counts are high enough, then we will be headed home. I wish I knew what to expect, but I have no idea where his counts will be or if we will be delayed. I am praying that we wont, but I can tell that Mathias is a lot more lethargic today than he has been, so I'm worried that this round of chemo is catching up to him. Today he woke up ok, but he only at a couple bites of cheese and drank some cranberry juice. It is now 5:30 and he's had nothing more to eat! He refuses everything I offer. He slept for about 4 hours mid day, and he hasn't been taking naps lately, so that's different. He is now content to sit on the bed and watch 'Meet the Robinsons'. I think he looks pale and tired, but I guess after all the drugs we've been pumping into his poor little body, that is what should be expected.

A friend of mine visited this weekend and brought me a bottle of wine. After all the stress I've had of late, I wanted to open it up....and after watching the pitiful Vikings game, I needed to drown my sorrows. I had nothing to open the bottle with, so I used a can opener and pushed the cork inside the bottle. When the cork went in, the wine squirted all over me and everywhere, but the important thing was I was able to access the wine. I am currently drinking my wine out of a styrofoam cup....I've learned to make do with what I have for now! Mathias thought I was crazy. :) He just now asked me for tacos, so that's a good sign...I better go feed him while he's in the mood.